Thanks to Elaine Benoit, Precision BioLogic, for referring the following survey, also found on LinkedIn.
As recently announced, the ISTH is collaborating with ASH, NHF and WFH to create clinical practice guidelines for the diagnosis and management of von Willebrand Disease (VWD ). In the initial phase of development, a stakeholder survey has been created to help determine the key topics to include in the guidelines. We are inviting healthcare professionals who treat people with VWD to take part in this survey. Your responses will inform the development of the specific questions and outcomes covered by the guidelines. The survey is two pages; each page will take approximately 5-7 minutes to complete. You may receive this survey invitation more than once, but please only complete the survey one time in order to avoid duplication. Click or tap here to participate.